Here are a few more pics from the House of Lords event that Charlie spoke at - one taken mid-speech; one with Pete in one of the committee rooms at the Lords; one of Chas post-speech; and another with all the other kids who were involved in making the film and Baroness Massey who hosted the event. Unfortunately Baroness Howarth of Breckland - or Valerie, as we know her better (she's patron of Little Hearts Matter) was unwell, and unable to host the event as planned, so everyone was very grateful to Baroness Massey for stepping in at the last minute.
Am still pretty impressed that our boy has spoken at such a prestigious venue, but as per norm, Charlie's taken it all in his stride, and is now preparing for his next public speaking engagement at the medical conference in June. (Although he's in two shows as before then as well!)
Life is full, but life is good.
Rosie and I headed down to see my sister today - she lives near the beach, and though it was a bit chilly, it was a glorious sunny day.
Rose was so excited to take their dog Kenny for a walk, and thoroughly enjoyed throwing his ball for him to fetch.
It was a lovely day, fab to catch up with Fi, and Rosie was chuffed to bits to see her big cousin Lizzie (who passed her driving test today too - well done Lizzie!) so all in all a really good day!
Well, Charlie and Pete have just set off for the station on their journey to the House of Lords.
There's a smart dress code, which means they both have to wear ties.
I know I've said on here before that my Dad was a 'tie man'.
He'd have worn a tie to the beach if we'd let him. (In fact, I'm sure there's an old black and white photo somewhere of Dad at a church youth camp, playing football in shorts, with a sports jacket and tie...)
Anyway. When Dad died, Charlie chose a handful of Dad's ties, to keep until he was a big boy.
And this is one of them.
As I tied it for Charlie this morning, around the crisp white collar of his shirt, it brought back so many memories of Dad - all those years when I was a little girl, watching him knot his tie in the bathroom mirror.
He would be SO proud of how far his little Charlie-Boy has come.
And I know Chas feels like he's taking a bit of his Grandpa with him to the House of Lords today.
Well, Charlie's off to the House of Lords on Tuesday, for the premiere of the DVD he filmed back in October.
He and six other kids with single ventricle conditions made the short film to help raise awareness of what it's like to live with half a heart - how, even though you look 'normal', your energy levels can be much lower than those of your peers.
Obviously, being on camera was right up Charlie's street, and the finished product (we've had a sneak preview because Charlie did some post-filming voiceovers for it) is looking brilliant.
So Chas is off to the Big Smoke with Pete, and will be speaking, along with a couple of the other children.
The attached pic is a still from the film - I'll be sure to post a link to it once it's released (probably mid-next month after the Little Hearts Matter Open Day.)
Today was a dress-up day at school for Rosie - all the kids dressed up as poor Victorians (specifically the Chartists - a subject which I studied to death at A Level and vowed never to think about ever again...)
She had a great day, and learned all about Victorian toys as well.
We have a quiet weekend ahead, thank goodness. It's been a fairly hectic week (not least because somebody saw fit to hack our PayPal account and spend £90-odd of our money on shoes...
So I've been running around filing fraud reports with the police, telling the shoe company not to deliver the shoes to the thieving so-and-so, and hassling PayPal to give us the money back!)
Charlie's working hard at the moment - he's off to the House of Lords next month - he's speaking at a Little Hearts Matter Event there, so he's in the middle of writing a speech, while recording voiceovers for a DVD he made with them last October half term.
He's also rehearsing for two different shows, preparing for a theatre exam, and has signed up for a week-long residential theatre summer school in the West End in August, which he's looking forward to already. (I'm quite jealous actually - it sounds fantastic, but it's only for people up to 21 so that rather rules me out!)
Anyway - that's all for now folks - have a great weekend! :-)
Welcome to Charlie's News! Charlie was born on November 5, 2003, minus the left side of his heart - a complex congenital heart defect known as Hypoplastic Left Heart Syndrome. He had two open-heart surgeries in his first five months, and had his third stage Fontan completion in March 2010, aged six-and-a-half.
Charlie's heart is special - but not as special as he is!