Sunday, December 24, 2017

Christmas Eve...

Ok, I know - two posts in as many days - I'll give you a moment to recover from the shock...

So, today has been lovely. We were up earlyish and headed off to Cheltenham for our annual trip to see Father Christmas on a steam train. The roads were quiet and we had a fab journey with carols on the radio all the way.
The train ride is always really mellow - not at all commercialised, and signals the start of Christmas for us.
Father Christmas was chatty and the home-made mince pies, as always, were fabulous.
Then we headed off to the cathedral in Gloucester for the carol service - you simply can't beat belting out Hark the Herald accompanied by brilliant choristers and a mahoosive pipe organ!
So now we're back home, and just waiting for Father Christmas to arrive!
Charlie was showing Rosie the NORAD Santa tracker earlier, so I keep hearing a little voice whispering down the stairs: "Where is he now Mum?" (For the record, he's currently in Malawi, on his way to Mozambique!!)
So there's nothing much left to do now, apart from to watch (another!) carol service on the TV and make sure everything is ready for what is likely to be a rather early wake-up call!
Happy Christmas Eve, everyone!

Saturday, December 23, 2017

Feeling festive!

Hi folks,
All is well here, although it has been a fairly manic few weeks.
Charlie and I spoke at a medical conference in Swansea at the end of November - it's been a while since I did any public speaking, but it was good fun and what we said seemed to be very well received.
And last week we had a letter saying that his Head of Year had put him forward for a school award for service to the community for all the work he has done towards raising awareness of kids with his condition - both through the videos and publicity he has done for Little Hearts Matter and the medical conferences he has spoken at. He was really pleased to win the award (as well as the iTunes gift card that came with it!)
He has also had a lot of rehearsals at the theatre for various productions and Christmas concerts, as well as choir performances at school. He's also been asked to join the adult company at the theatre now his voice has broken, so he's enjoying that too. (And he was recently given an award after the theatre awards night for thinking on his feet and rescuing a scene in which somebody missed a cue and wasn't on stage when they needed to be, so he stepped in and played their part so the show carried on with the audience none the wiser!)
Rosie also did really well in her play at school, and was chosen to do one of the readings at the whole school carol service at the church in the village where Will is buried.
She also won the school Christmas colouring competition, which pleased her no end. She's a really meticulous child and spent ages on her picture!
I don't think I mentioned before, but we went skating at the start of the month and Charlie fell over and got a buckle fracture of his left wrist. (A buckle fracture is where the bone is compressed rather than snapped - like if you stamp on a drink can which then crumples - so instead of a crack, he ended up with a bulge sticking out of the side of the bone on X-ray.) Anyway, other than the first week or so, it hasn't been too painful and he's been in a reinforced metal splint for the past three weeks. Hopefully it should be able to come off fairly soon.
We also had pacing clinic last week - he's grown another couple of inches in the past six months and his pacemaker is still working fine with a minimum of four years battery still left.
This is a rather random post isn't it! Full of various snippets of info I'm writing down as I'm thinking of them!
We went to visit Nanny today - she's at my brother's house for Christmas so we went to drop her presents off. As you can see from the pic, Charlie is much taller than her now!
Tomorrow we're off for our traditional Christmas Eve - a ride on the steam train to see Father Christmas in Cheltenham, then our favourite bit of the day - the carol service at Gloucester Cathedral before heading home to wait for the man in red to arrive!
Hope you're all enjoying the run-up to Christmas - enjoy the magic everyone!

Friday, November 10, 2017

Science Day at school...

And it's Doctor Rosie, Consultant Cardiologist at your service!

Sunday, November 05, 2017

14 today!

Today our Charlie-Boy turned 14 - which sounds so much more grown up than 13!
We've had a fab weekend - went to a firework display on Friday night, then yesterday we headed into Cardiff to tackle an Escape Room, which was loads of fun, and we got out with a few minutes to spare!
We had tea at a brilliant steak restaurant/art gallery, and much to Charlie's delight we ate our meal inside a dalek... and we all know how much he likes Doctor Who!
Today was fab too - he had loads of birthday messages and visits from friends and family, not to mention being totally spoiled with lota of lovely presents.
Then this afternoon his friend Fi came round for a film and pizza, and some fireworks in the back garden.
Bonfire Night really is a brilliant day for a birthday!
I know I say it every year, but we are so proud of this boy. He never ceases to amaze us and brings us so much joy.
Happy Birthday Chas!

Wednesday, September 06, 2017

Back to school

Sent from my iPhoneWell, the summer holidays are over and Rosie went back to school yesterday.
Charlie had an extra day off (he and I went to a Sherlock Escape Room - it was brill and we escaped in almost record time!)
So this morning was the first proper school morning with both of them, and I survived!
House needs a major post-summer blitz, but I'm feeling the need for coffee and a good book first!
Am attaching the obligatory pics - and can you believe how much Chas has grown in the two years since he started secondary school?!
So into Year 1 for Rosie, and Year 9 for Charlie.
Have a fab year kids!

Friday, July 14, 2017

Charlie's talk

Have been meaning to post this link to the YouTube video of Charlie speaking at the medical conference the other day. It's about ten minutes long. Pete missed the first couple of seconds, but the rest is there. So proud of our boy and how far he has come. :-)