Thursday, April 16, 2015

Party girl!

It was Rosie's friend Nell's birthday party yesterday, and Rosie was so excited to go to her party - she even wore her new dress for the occasion! She's getting so grown up now and will tell anyone who'll listen that she'll be four on her next birthday. (Never mind that it's still six months away!)
Oh, and check out Owen's mum's blog in the sidebar - he's doing so well. Still a way to go, but he's such an amazing boy!

Wednesday, April 15, 2015

Rosie finished her ice lolly first...

...so she decided she'd better share Charlie's too! :-)

Friday, April 10, 2015

Owen

Those who have read here for a while might remember that I mentioned a little boy called Owen Simmons, back in July 2013. His mum's blog is in the sidebar on the left.
Owen was born with HLHS like Charlie, but owing to high lung pressures was unable to have his Fontan surgery. So his medical team opted for transplant, which went ahead in July 2013. He recovered brilliantly and has done amazingly well ever since until this week.
He had a stomach ache on Monday, and his tummy became swollen and distended the next night. He was taken into hospital for a scan the following morning, and they found that his new heart is not working well at all.
Nobody really knows why it has happened, and it is a terrible shock for his family as all was well at his last check up in Februrary.
Things have deteriorated frighteningly quickly, and Owen is now on ECMO (full life support) while they await the results of a heart biopsy.
It is heartbreaking to read his mum's blog posts and Facebook updates. They are in the middle of a terrifying, nightmarish situation, which has suddenly appeared out of nowhere.
I know his parents Andrea and Carson would appreciate your thoughts and prayers.

Sent from my iPhone

Sunday, April 05, 2015

Happy Easter!

We woke up to a gloriously sunny Easter morning, so thought we'd make the most of the weather and head off for a wander around the lake at the park.
We took the leftover bread from the emergency loaf we bought at St Fagans yesterday, and the various ducks, geese, moorhens and swans (plus a few gulls) had a feast!
The kids had a lovely time, and after a play on the swings we headed home, so they could attack their stash of Easter eggs.
Now I just need to avoid eating any of the chocolate...
Happy Easter, everyone!

Saturday, April 04, 2015

A day at St Fagans...

St Fagans is the Welsh National History Museum, and it's not far from where we live. It's great for a wander round, with lots of interesting old buildings to peep inside. You don't even have to pay to get in, so it's a bargain day out!
We heard they had an Easter egg hunt on today, so when the weather looked good, we decided it was worth a visit.
The sun came out and the kids had a great time wandering round, looking for the answers to their hunt clues.
We'd stopped at the supermarket on the way there to grab a picnic lunch, so we found a sunny bench to sit and eat.
Unfortunately, that was when we discovered that we'd somehow left Charlie's lunch behind at the shop. Doh.
There's a little old-fashioned working bakery at St Fagans, so I went to see if they had something for him to eat. Unfortunately they didn't do sandwiches, but he was very pleased to end up with a small, hot-from-the oven, crusty loaf, which he happily scoffed! He's not really a big sandwich fan anyway, so plain hot bread was right up his street!
There were a few old-fashioned rides and stalls there for the holiday weekend, which the kids enjoyed.
They finished the egg hunt and took their completed quiz sheets back, and were given an Easter craft kit and a chocolate egg each. (Rosie demolished hers in about two minutes flat, while Charlie's saving his for tomorrow, so no doubt she'll be angling for a bite of his in the morning!)
We explored a bit more, and then headed home - all the blossom is starting to come out now, and there's a bit of warmth in the air. I can't wait to be able to abandon our winter coats and gloves at last! (Although having said that, knowing Wales it'll be snowing and blowing a gale by tomorrow...)

Tuesday, March 24, 2015

Five years ago...

Hard to believe, but it was five years ago today that Charlie had his third open-heart surgery - his Fontan procedure.
He has come so far, and never ceases to amaze us.
We are so very, very proud of you, Charlie-Boy. xxx

Friday, March 20, 2015

Rosie's not taking any chances...

...of the eclipse hurting her eyes.
Who needs to buy special eclipse-viewing glasses when you've got four pairs of sunglasses!
(And no, I didn't let her look at the sun, just in case you're about to shout at me for endangering her eyesight...)